Tuesday, November 23, 2010

A Guest Post: Meri @Our Diabetic Life

(NaBloPoMo Day 23)
While working on my Daily Diabetes Facts I have been perusing some of my friend's blogs to help me. Sometimes I have linked to their blog within my post, but for this one I decided that Meri wrote it best. I asked her to let me use her post as a guest post on my blog.

So, Meri, THANK YOU for being the FIRST guest blogger to post on my blog. I LOVE the idea of having occasional guest bloggers and will definitely be looking for more of this in the future!

For those of you who don't know Meri @Our Diabetic Life, she is one of the most AMAZING D Mamas out there! She has 4 boys ages 7-14, THREE of which have T1 Diabetes. She also is lucky enough to have Lawton, the most amazing Diabetic alert dog, EVER. If you have not read her blog, you are missing out! She has a way with words that always leaves me thinking "I feel EXACTLY the same!". She can take the thoughts right out of my head and put them on paper. She may have a swelly, hurty brain, but she is AMAZING. Lots of love to my D Mama, Meri...

The only constant, is change.

January 27, 2010

A little insight on J. J was always a skinny little guy.

To give you a little perspective, here are some facts:

*L who is in Kindergarten, is wearing pants that J wore in 2nd AND 3rd grade.

*J had the same carb ratio AND correction ratio for 4 years! K-3.

*J who is in 6th grade, is only 2 inches shorter than my 2nd grader. (But to be fair, B is REALLY tall.)

*J’s little buttie and hips were depleted from so many years of shots. He was too skinny to get injections anywhere else. He needed some fat to slow down the insulin because he was so skinny.

But J is changing. He is 12 now and has started puberty. He has gained a lot of weight and is finally growing. Within one year he has completely transformed. I recently looked at Christmas pictures that I thought were from 2 years ago, but they were actually from 1 year ago. He was so tiny then…not anymore.

J is extremely happy he is growing now. Maybe not happy about the extra weight...he has quite a tummy, but trust me when I tell you, that wearing the same size shoe for 3 years didn’t sit well with him.

So here he is….just growing….and changing….and it’s happening right before our eyes.

Last night though, it really socked us in the head.

Lawton alerted and the boys ran to check their blood sugar. (If you are imagining happy boys skipping cheerfully to their blood sugar monitors, you would be wrong. They were watching a program and wanted to get their check in during a commercial. It was a scramble if anything.)

Anyway…Lawton alerts…they check…and they report back to us. All of them were in the low 100’s with extra insulin on board. It was J’s report though that threw us for a loop.

“I am 139, with a correction needed of 0.8 units and I have 1.9 units on board.”

What the! (Not What the! about the insulin on board...What the! about his correction.)

My husband shook his head….”No way J. There is no way that is right. You are 139 and you need a correction of o.8? What is your target, 50??”

Giggles ensued as my hubby and J started calculating in their heads what his correction ratio was. My husband was rolling on the ground laughing…He kept saying ”There is no way!"

You see, to us, J is still that little boy. His correction ratio was for so much of his life, 1 unit of insulin to bring his blood sugar down 100 points.

While my math enthusiasts were figuring out ratios in their head, I grabbed J's pump and looked up what his sensitivity was. Sure enough, 1 unit is needed to bring him down 50.

What the!

That explains my eye twitching at night when I correct J. If his pump tells me to give him 2 units there is always panic in my tummy…my knee jerk reaction is ALWAYS, “That can’t be right.” But it is.

Change happens whether we want it or not.

We are constantly changing basal rates and ratios. It seems they never just gradually need more insulin…it always happens suddenly. Out of nowhere, someone will start having numbers in the 400’s. After going through days of troubleshooting, it always becomes apparent. A change needs to be made, they need more insulin. But why so suddenly? Why no warning? As they get older, I can see it more clearly, but when they were tiny, it was WHAM! HE NEEDS MORE INSULIN, NOW!!!

You would think changes would happens like this…

But it seems they always happens like this…

Maybe I am too busy and overwhelmed to notice the steady rise in insulin needs. Maybe.

But if there is anything constant with diabetes…it’s that nothing stays the same.

Diabetes Fact #15: Having Type 1 and getting an illness (especially a tummy bug) CAN be dangerous.

Diabetes Fact #14: Without insulin, a person with T1 Diabetes would DIE within ONE week.

Diabetes Fact #13: Type 1 Diabetes usually strikes children, adolescents, and young adults, but it CAN be diagnosed in adults as well.

Diabetes Fact #12: It is important for families of Diabetic children or the people with Diabetes themselves to genuinely try to understand what we go through, to learn about Diabetes along with us, and to support us through encouraging comments.

Diabetes Fact #11: Diabetes is ALL consuming. It is NOT our life, but it is a HUGE part of it.

Diabetes Fact #10: Parents of children with Diabetes HATE when people say "I could NEVER do it!" when referring to the management of their kid's disease. In reality, YOU could, and WOULD do it if you HAD to. We probably had the same thoughts as you and now look at us, doing it 24/7.

Diabetes Fact #9: The term "Juvenile Diabetes" is outdated. We now call it "T1 Diabetes" or "Insulin Dependent Diabetes". People with this type of Diabetes will NEVER outgrow it. EVER. They will have this relentless disease until a CURE is found.

Diabetes Fact #8: A cure would be great, but a long life without complications is a close second for people with T1 Diabetes.

*Disclaimer: I am a mom of a T1 Diabetic child. I am NOT a doctor. I just play one in real life. Please do not take anything in this post or any other post on this blog as medical advice. If you have questions or concerns of your own, please seek advice from your doctor.*


Alexis of Justices Misbehaving Pancreas said...

i love how you have all these facts for each day! Meri you made me cry and laugh. J has some horse doses as well as we call em and it scares me. I cant lie. Thank you for this post i cant explain why but i needed it.

Alexis of Justices Misbehaving Pancreas said...

do have a question if its ok. Whats his target? 139 with that iob did u give a correction as suggested?

Reyna said...

Wonderful GUEST!!! Wonderful POST!!! And Yep, that is one of the most important things that I wish I could convey to people about "d"...it is never the same. That is why it is so difficult to manage.

Beverly said...

What are you nuts doing at those times in the AM???? Check the BGs and go back to bed!! Get off the blogs ;)

Heidi / D-Tales said...

I don't remember this post from when Meri originally posted it. I'm so glad you reposted it here, because it's great! It's just so true how nothing stays the same...which scares me!

Meri said...

Thank you so much Tracy for giving me the opportunity to guest post on your great blog, during this oh so important month! I wrote this almost a year ago...and it is still so true!

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