Saturday, November 20, 2010

Difficult to Manage

(NaBloPoMo Day 20)
Everything The Superhero does and does not do affects his blood sugar level, 24 hours a day 7 days a week. EVERYTHING.


No sleep.




Sitting still.

Watching a movie.


Being scared.






This is why the person who is watching The Superhero MUST be trained in how to care for him. It is not as simple as counting carbs and giving insulin. There are SO many factors that go into EVERY decision we make in regards to his care.

Diabetes Fact #20: Despite always injecting the proper amount of insulin, people with type 1 Diabetes face many other factors that can adversely affect efforts to tightly control blood sugar levels. These factors include stress, hormonal changes, periods of growth, physical activity, medications, illness/infection, fatigue, and EVERYTHING they do or don't do

Diabetes Fact #19: T1 Diabetes is a 24/7/365 disease. It NEVER sleeps and neither do the parents of the children who have it (or the T1 people themselves).

Diabetes Fact #18: T1 Diabetes can happen to ANYONE, it is not necessarily hereditary. This means that yes, it CAN happen to YOU or to someone YOU know.

Diabetes Fact #17: People with T1 or T2 Diabetes (and their caregivers) are more likely to experience depression than their peers without Diabetes.

Diabetes Fact #16: The out of pocket cost of managing T1 Diabetes is EXPENSIVE.

Diabetes Fact #15: Having Type 1 and getting an illness (especially a tummy bug) CAN be dangerous.

Diabetes Fact #14: Without insulin, a person with T1 Diabetes would DIE within ONE week.

Diabetes Fact #13: Type 1 Diabetes usually strikes children, adolescents, and young adults, but it CAN be diagnosed in adults as well.

Diabetes Fact #12: It is important for families of Diabetic children or the people with Diabetes themselves to genuinely try to understand what we go through, to learn about Diabetes along with us, and to support us through encouraging comments.

Diabetes Fact #11: Diabetes is ALL consuming. It is NOT our life, but it is a HUGE part of it.

Diabetes Fact #10: Parents of children with Diabetes HATE when people say "I could NEVER do it!" when referring to the management of their kid's disease. In reality, YOU could, and WOULD do it if you HAD to. We probably had the same thoughts as you and now look at us, doing it 24/7.

Diabetes Fact #9: The term "Juvenile Diabetes" is outdated. We now call it "T1 Diabetes" or "Insulin Dependent Diabetes". People with this type of Diabetes will NEVER outgrow it. EVER. They will have this relentless disease until a CURE is found.

Diabetes Fact #8: A cure would be great, but a long life without complications is a close second for people with T1 Diabetes.

*Disclaimer: I am a mom of a T1 Diabetic child. I am NOT a doctor. I just play one in real life. Please do not take anything in this post or any other post on this blog as medical advice. If you have questions or concerns of your own, please seek advice from your doctor.*

1 comment:

Nicole said...

I know that I said this before but I LOVE your facts that you are sharing...great job of raising awareness!! and even though I have not commented on everyone I am reading!!

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