Tuesday, November 16, 2010

Cost of Diabetes

(NaBloPoMo Day 16)
While I sit and debate whether or not I have the money to send my almost 4 year old to pre-school for $300 per month, I am also thinking about our monthly Diabetes expenses.

We can easily spend $300 out of pocket each month for all of the supplies we need to keep The Superhero alive.

And we spend $40 every 3 months to go see our Endo.

That is about $3700 per year OUT OF POCKET.

Once The Superhero has lived with Diabetes for 50 years, we/he will have spent well over $188,000 OUT OF POCKET.

And it is very likely, it will be MUCH higher, since costs are sure to go up.

This includes his insulin (which is about to go up to $60 per month), test strips ($25 per month), blood ketone test strips ($60 per month, we do not fill it every month though), lancets ($35 per month, not filled every month), Pump sites and cartridges ($50 for 3 months), and Dexcom sensors ($65 per month), Glucagon (filled about 1x per year, $35).

I did THIS post back in March, with one trip to the pharmacy and the cost associated with it.

My blog friend Heather @ Sweet to the Soul recently posted about their costs as well.

Lora posted about it during Invisible Illness Week.

And Laura posted about The Cost of it All.

And I just got our insurance info for next year. I will be paying about $150 more per month and will be paying more for each doctor visit ($30 instead of $20, and still $40 for specialists) and each ER visit (now $200 each trip).

I hate putting a price on my son's life.

A price on the choices we make for his care.

I would NOT do without any of these things.

So, I sit and think about what else can be cut from our daily/weekly/yearly expenses.

This is probably the part I hate about Diabetes the most. I don't EVER want The Superhero to know how much the cost of Diabetes bothers me.

I want him to have the healthiest life I can give him, and so, I will continue choosing the latest and best care for him. And he WILL continue to go to pre-school. I will NOT let Diabetes and the cost associated with it affect him this way.

And will figure out how to pay for it along the way.

*I* can eat ramen noodles 3 meals a day, right? (I would not do this, but you get the point)

And THIS face, is worth it all...

Diabetes Fact #16:The out of pocket cost of managing T1 Diabetes is EXPENSIVE.

Diabetes Fact #15: Having Type 1 and getting an illness (especially a tummy bug) CAN be dangerous.

Diabetes Fact #14: Without insulin, a person with T1 Diabetes would DIE within ONE week.

Diabetes Fact #13: Type 1 Diabetes usually strikes children, adolescents, and young adults, but it CAN be diagnosed in adults as well.

Diabetes Fact #12: It is important for families of Diabetic children or the people with Diabetes themselves to genuinely try to understand what we go through, to learn about Diabetes along with us, and to support us through encouraging comments.

Diabetes Fact #11: Diabetes is ALL consuming. It is NOT our life, but it is a HUGE part of it.

Diabetes Fact #10: Parents of children with Diabetes HATE when people say "I could NEVER do it!" when referring to the management of their kid's disease. In reality, YOU could, and WOULD do it if you HAD to. We probably had the same thoughts as you and now look at us, doing it 24/7.

Diabetes Fact #9: The term "Juvenile Diabetes" is outdated. We now call it "T1 Diabetes" or "Insulin Dependent Diabetes". People with this type of Diabetes will NEVER outgrow it. EVER. They will have this relentless disease until a CURE is found.

Diabetes Fact #8: A cure would be great, but a long life without complications is a close second for people with T1 Diabetes.

*Disclaimer: I am a mom of a T1 Diabetic child. I am NOT a doctor. I just play one in real life. Please do not take anything in this post or any other post on this blog as medical advice. If you have questions or concerns of your own, please seek advice from your doctor.*


Stephanie said...

Oh, Tracy, I hear you. My husband just came downstairs and said that our insurance premium is going up $50 every pay period from what we were paying before. I'm hoping that the copays don't change.

Joanne said...

I've wanted to sit down and figure out exactly what Diabetes costs us per year, but I'm afraid of what I would see. You have way more guts than I do! I'll just continue to live in denial.

Reyna said...

I love the analogy at the end with the Ramen Noodles Tracy. I am with you...whatever it costs, I will do whatever I can to ensure Joe has what he needs to be able to manage "d" to the best of his/our ability.

Great post...another awesome fact.

Laura said...

Is there something wrong with eating Ramen noodles everyday?? :)

You know I know the cost of it all. Praying for you today and everyday.

Thanks for the linky love! :)

Lora said...

We spend between $300 & $350 per month on just doctors and pharmacies. Thats the reason I had to go back to work. Damn D!
The funds are funky at our house too sista!! Hang in there... were thinking about you all.

Beverly said...

this superhero will NEVER have to go without!!

Heather said...

It's harder when you see it on paper. I know you are struggling with insurance right now. Praying for you girl!

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