Appointment Update

Yesterday we went for The Princess' hematology and ENT appointments.

We received great news at hematology. Her platelets are still up, 94,000! The doc said that since it has been 6 weeks since the last IVIG treatment The Princess is probably making platelets on her own.

We have heard this before, and then 2 weeks later her platelets dropped. I am trying to hold out a little hope this tme.

The doc also said that she really feels this is just ITP and she does not see a need for a bone marrow biopsy at all. That was also great news.

We go back on the 15th, or sooner if needed.

The ENT agreed with me that a second set of ear tubes would be beneficial. The left ear, ehich has no tube currently, is filled with fluid. We will also have her adenoids removed. This is commonly done when a second set of tubes is needed. I was told the scheduler would call me.

To my surprise, I got the call this morning. They have an opening tomorrow for the surgery. Since her platelets are up today, I took it.

So, she will go in tomorrow morning to get all this done. And hopefully she will feel great by Friday for her birthday. Maybe she will even start to sleep through the night!

I can hope...


*Disclaimer: I am a mom of a T1 Diabetic child and a child with ITP/Asthma/Dysphagia. I am NOT a doctor. I just play one in real life. Please do not take anything in this post or any other post on this blog as medical advice. If you have questions or concerns of your own, please seek advice from your doctor.*

Blog Post updates, 3rd Edition

Here are some updates on recent blog posts...

1) To bang, or not to bang...

Well, initially I had decided "not to bang" and to grow The Princesses bangs out. She had a different idea. I always put her hair up out of her face when she goes to daycare.

This last week she started pulling out her hair thing and the teachers could not find it. So that resulted in her having her hair look like CRAZY the rest of the day.

After picking her up Friday with CRAZY hair, I decided we just HAD to get the bangs cut. And I decided to get all of her hair cut so it would look more even and "finished". Enjoy the pics below from her cut experience and the resulting cuteness when we were done.



2) The Diabetes MeMe for kids

First, we know no one named Karen. So I am not sure how she is his best friend. That CRACKED ME UP.

Second, we don't eat cookies all the time. I don't even know where that one came from. This is a RARE thing in our house.

Third, I want to be 5 when I grow up too!



3) Update on the Ears for The Princess

Ears seem to be healing great. The GI doc happened to look in there while we visited her and she said they looked good. We go back the the ENT on the 1st of November for a check up. I will update after that appointment. Thank you all for the prayers for healthy ears.



4) 5 Years Ago/ Trip to Vegas

Thank you all for the well wishes on our 5 year anniversary. It is so surreal to know we have been married for 5 years. It seems like yesterday! We had an interesting time in Vegas. A post will be coming when I can find the time. We enjoyed casino hopping and playing the penny slots. I know, I know, we are BIG spenders. :-)



5) Endoscopy has been scheduled

And has now been re-scheduled, and MOVED UP. The Princess was/is getting more and more miserable since re-starting gluten just over 1 week ago. She has had to re-start her acid reflux meds and is NOT sleeping well, worse than before. I called on Thursday and BEGGED for them to move her up to a sooner date. I guess I sounded pathetic enough on the phone because the doc is getting her in THIS Tuesday the 19th.

She is scheduled for a 1pm endoscopy. I will arrive with her there around 11am. My parents will be out of town, so I am VERY THANKFUL for Wendy right now. She has offered to keep The Superhero for the day while I take care of The Princess and her biopsy. Rod could take off work, but since he is still in training at the new job, I did not want him to have to take time off for this.

So, we will have answers SOON. I will most likely just put The Princess back on the GF diet after her endoscopy while we wait for the results. I feel it really did help her feel better and I think we will end up there anyway. A friend of mine shared her friend's blog link, and through there I found a link with more info on EE.

EE is something the GI doc will be biopsying for through this Endoscopy. And The Princess has EVERY symptom on the list. So, even if celiac is negative (which was my first thought with all of this), I still feel there is SOMETHING going on with her and wheat. I have always noticed something and am really hoping for answers now.

I will update after Tuesday to let you all know how everything went. I am not sure how long before we get the official results, I am hoping to know before the weekend. We will see.



6) GIVEAWAY

Don't forget to enter my blog GIVEAWAY. I mean, really, who doesn't want to win FREE stuff!

Update on The Princess

Well, if you read THIS post, then you know that we went in to get tubes for The Princess. I am happy to report that the surgery went well and she is doing mostly better now.

The doctor said her left ear was REALLY inflamed and full of fluid (which he drained). She did great going off to the nurse before the surgery, only cried for a minute.

She had a hard time waking up after wards. She cried a lot and was thrashing herself around. I went in and held her in recovery and once she opened her eyes we got her to drink a juice. Then they rushed us out (that is how out-patient works around here).

They seem to kick you out pretty quick. She was still pretty fussy so I sat in the back of my dad's truck with her. I had her eating snacks within a few minutes and she was a much happier little Princess.

My mom took The Superhero to school and picked him up. Then she kept him until the afternoon so I could spend the day with The Princess.

The Princess and I watched a Strawberry Shortcake movie (her new favorite) and then we took a 2 1/2 hour nap around 11am. It was SO nice to sleep! She has not napped that well in a LONG time.

Since the surgery, she has started going to sleep easier. She is still not sleeping well, and is in bed with me every night.

She has also started talking and demanding things in her sleep. The other night she insisted we get her crocs for her (either that or socks). Before we even had a chance to get them, she was fast asleep. Last night she insisted on having a hair bow. I told her I was going to get one, and she went back to sleep while I pretended I was getting up. Silly Princess!

And on another Princess note, we went to the GI doctor yesterday. I can honestly say we talked about EVERYTHING that has ever gone in and come out of The Princess. There was more poop talk than I could have imagined.

But, the doc has determined that we definitely need to do an Endoscopy (upper) and something else in the lower area too. She named several reasons that The Princess could be feeling the way she has for so long.

I have to go back to giving her Gluten for the next couple of weeks and the procedure will be scheduled for 2-3 weeks from now.

I will keep you all posted on when this is scheduled and how it goes. I just want answers. She needs to feel better.

Thank you all for your thoughts and prayers. And, I will leave you with some pictures from her surgery day. Enjoy!

In Pompa's truck on the drive over, 5:30am.

She REFUSED to wear their gown, she chose to be naked instead (just a diaper).



Being super cute.


"Reading" a book with Pompa. (really watching the movie instead)



Eating a snack on the way home.