A glimpse into the week ahead...

It seems we never have a dull moment around here. And we rarely have a week without someone having a doctor appointment these days.

Last week we received some decent news. We went in on Wednesday for The Princess' platelet check to find out that the steroids she was on for her asthma the week prior helped her platelet count A LOT. She was back up to 137,000! Amazing. We avoided an IVIG treatment for now. We scheduled her next appointment for 3 weeks from then, on September 28th.

Today we are going to the dermatologist for a follow up for The Princess. She has had this rash (perioral dermatitis) on her face since May. The dermatologist had us using a protopic cream 2x per day for 6 weeks. I wish I could say she was "clear", but she is not. I forgot to use the cream for 1 1/2 days last week and the rash came back worse than before. The rash is not contagious, it just looks yucky and bothers The Princess a lot when it is bad.

Tomorrow I take The Superhero for his quarterly endo appointment. My dad asked me why I even take him for these appointments. We do all the adjusting on our own. The only reasons we go I guess are to get his A1C and to hear how great she thinks we are doing. Somehow that helps me keep plugging along with Diabetes. I am not nervous at all this time around. Diabetes (knocking on wood) has been ok lately.


Then on Thursday is a bigger appointment for this week. The Princess is scheduled for a bronchoscopy at the Children's Hospital. In my post about the longest day of my life so far, I mentioned that the pulmonologist wanted to see if something more was going on causing The Princess to fail her swallow studies.

I got the call on Friday that they had an opening for the 15th with our doctor, so I took it. If we waited for a date that worked better in my schedule, it would be with another doctor or more than a month out. So, Thursday of this week it is! We have to be there at 12pm and the procedure will be at 2pm. The Princess is not allowed anything to eat or drink for 6 hours prior to the procedure, which means nothing after 8am. Since her drinks are thickened and the thickening gel process as a food, she cannot have ANYTHING. This will be HARD for her.

So, that is what we are up to. I would like to request prayers and positive thoughts from all of my friends regarding the bronchoscopy. I am not really nervous this time around about her being put under, but any prayers and thoughts are appreciated and I am sure will help!

I will update when we know more.

Hope everyone has a great week!



*Disclaimer: I am a mom of a T1 Diabetic child and a child with ITP/Asthma/Dysphagia. I am NOT a doctor. I just play one in real life. Please do not take anything in this post or any other post on this blog as medical advice. If you have questions or concerns of your own, please seek advice from your doctor.*