The Princess has two appointments on Thursday and The Superhero has one appointment as well.
We go down to the children's hospital bright and early for her modified barium study. Then we have her hematology appointment. Then in the afternoon, The Superhero has a pulm. appointment.
We are hoping and praying for a few things...
1) The Princess to have outgrown this swallowing disorder. I am tired of mixing gel into her liquids. And I am sure she is tired of drinking them.
2) Higher platelet counts. She is still bruised, though not nearly as much as last week. So I have hope that they have gone up enough to avoid an IVIG treatment. I really hate putting her through that.
3) Praying for answers as to why The Superhero has had croup so many times. Is it asthma? And should we be doing anything different?
I will update FB throughout the day and the blog either in the evening or by Friday morning.
Thank you all for your thoughts and prayers.
*Disclaimer: I am a mom of a T1 Diabetic child and a child with ITP/Asthma/Dysphagia. I am NOT a doctor. I just play one in real life. Please do not take anything in this post or any other post on this blog as medical advice. If you have questions or concerns of your own, please seek advice from your doctor.*