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Last night was one of the worst nights we have ever had.
Seriously sucked.
I will use our Dexcom graph to explain what took place...
Not sure where the 300's came from at dinner time. We bolused. He ate (cereal!). We bolused. He went HIGH. We changed his pump site. We bolused.
He seemed to come down fine. A little too much. We gave him a small "snack" before going to bed. When I went to bed at 10:30 Dex said 197 with a slanted arrow up. Rod was already sleeping in The Superhero's bed (he fell asleep with The Superhero). I went to bed.
1:30am. I wake up to The Superhero SCREAMING. I thought he fell out of bed and ran to his room. Rod was still in there and The Superhero was just SUPER upset. He said he heard a noise that scared him. He was genuinely SCARED. It was horrible to see him THAT scared.
I immediately grabbed Dex to see what we were dealing with.
I saw this...
I have no idea if he really went LOW (below 40) or not. We were sleeping. It was about 15 minutes after the LOWS that we were woken up to the screaming. I am really hoping he was laying on it weird and he didn't go THAT low.
But, if he did, THANK YOU GOD for keeping my boy safe while we were sleeping! And THANK YOU GOD for him waking when he did!
We treated the low with snacks. I also started a temp basal decrease. I had a feeling the lower numbers came due to the site change (often happens with new sites). And of course lots of hugs were given out. He was SO SCARED.
Rod and The Superhero got up and went to the couch. The Superhero was still SCARED. They were going to watch some TV for a bit.
Apparently when my temp basal decrease ended, The Superhero started to drop again. Rod treated and started another minus temp basal to get through the rest of the night.
This time, definitely over treated a bit. It is all such a "guessing" game.
I woke up at 5:30am to find The Superhero STILL awake on the couch. I told both Rod and The Superhero that he needed to go back to sleep, even if only for an hour. He has art class today and I am NOT taking an overly tired, cranky child with me.
I was happy to see when I woke up at 7, that both boys were sleeping on the couch.
I was not happy to see The Superhero had been HIGH for a couple of hours (to no fault of anyone, but Diabetes). Ugh.
An hour and a half later right now, and he is down to 367. I am RAGE bolusing this morning and need to get him DOWN.
Especially since he wants cereal for breakfast. I told him his blood sugar has to have a ONE in front of it.
I hate Diabetes. No silver lining. No rainbows. No unicorns here today.
*Disclaimer: I am a mom of a T1 Diabetic child and a child with ITP/Asthma/Dysphagia. I am NOT a doctor. I just play one in real life. Please do not take anything in this post or any other post on this blog as medical advice. If you have questions or concerns of your own, please seek advice from your doctor.*
8 comments:
I'm so sorry, Tracy. What a rough night. :( No silver lining or unicorns needed - it really is okay to not be okay with all of this. It is a lot to take on, and you do it amazingly. Your little ones are so blessed to have a mama that does such an incredible job - and it would weigh on anyone to go through what you do each and every day.
What a horrible night!!! I'm so sorry. I can't even imagine how those swings and extremes made the Superhero physically feel. I hope today goes smoothly and you see nicer numbers. I hope he feels well and does fine at art class. (((HUGS)))
Yuck, yuck, yuck!! So hoping today brings better numbers!
Bean had a rough night, but nothing like this! Just stubborn highs that didn't really want to budge.
darn. so that means today will be perfect, you have paid your dues to D. thats always scary when you have those lows. especially through the night, when really it could be a combination of so many things, at the end you are usually none the wiser, at least thats what happens with us. BIG HUGS.
Sounds awful. So hard treating lows, fighting highs back down -- that back and forth until you find stability can be exhausting! Roselady
Geez...that's scary, scarier than scary!!! Maddi used to go low after a site change too, I always have to stay up and recheck her two and 3 hours after to make sure she doesn't drop...sometimes she did, sometimes she didn't. Ugh. Sounds like it was a low nightmare, I know lots of adults report vivid nightmares when low. I guess that's a good thing, since it wakes us up. Poor little guy! He must have been so scared!
Ugh! That roller coast makes me ill just looking at it. What a night for sure!! I hope he's come down nicely and had fun at art class! (( hugs)) mama, what a day for sure!
Oh Tracy, this night sounds like it was one of those for the "record books". I hope the following day you all faired well. Love to you. Yep, as Lexi says..."it ain't all unicorns and glitter"...not even close.
Muah.
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