I hope all of my friends in blogland are doing well. I am really missing blogging and reading blogs, life is just getting in the way right now.
Here are a few updates on our family...
1) The IVIG treatment we did 3 weeks ago was successful. After 1 week The Princess' platelets were up to 230,000. She did have many of the possible side effects, but did recover within a few days.
2) We went to Disneyland. My parents, my brother, his girlfriend, and her son all joined us. It was AMAZING. We celebrated my birthday, my brother's birthday, and Mother's Day all in one weekend of fun.
3) I turned 30. I am officially a "grown up".
4) I have signed The Superhero up for SOCCER. I am not quite sure about this one yet, but it IS happening. Should be interesting.
5) The Superhero is signed up for pre-school for next year. He will be at the same school as this year, with the same Awesome nurse. This makes me happy.
6) Friday is the LAST day of school for this year. I work until June 15th, but won't have students assigned after Friday. I am SO ready for a break right now.
7) The Superhero just had a tummy bug. Typically I see these coming with lows for days ahead of time. Not this one. It came out of nowhere. Fortunately, (sort of), this one came with higher BG's instead of low ones, at least at first. And we were able to manage it at home. This is our first tummy bug since dx that has not landed us back in the hospital. I am very proud of that. Especially since the first thing he said (as he was throwing up) was "I don't want to go to the hospital". Broke my heart. He is doing a TON better today.
8) The Princess had her follow up hematologist appointment today. It has been 3 weeks since her first IVIG. She started bruising again over the weekend, so I had a strong feeling her platelets had dropped again. They did. 12,000. We are scheduled for another IVIG treatment tomorrow. I will post more about ITP, IVIG, and what I have learned so far in another post. --- She will go in for her treatment tomorrow and we are hoping to medicate her before the side effects kick in during the night. And since we know the treatment "works", we don't have to go back for 3 weeks for blood work.
Well, that is what we have been up to. :-) I can't wait to get some time to myself this summer so I can catch up with all of you!
*Disclaimer: I am a mom of a T1 Diabetic child. I am NOT a doctor. I just play one in real life. Please do not take anything in this post or any other post on this blog as medical advice. If you have questions or concerns of your own, please seek advice from your doctor.*
6 comments:
Glad to hear all the wonderful news! :)
Happy to read your update! Good luck with the princess! Hope this IVIG treatment goes well and she has fewer side effects!
Great update...AND...Thinking of you today. :)
How busy you are! At least you've had some fun things balancing out the tough days. Hope your next appt goes well.
Great update......and praying that the princess is up to no good and keeping you on your toes right this very minute :)
You certainly have plenty going on. Just take care of you and yours. Congrats on the big 3 0. Its the new 20...
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