The Results are in...

Well, it was not a long wait! I got a call from the GI doc about The Princess' results this morning.

Negative. For EVERYTHING. She has a completely normal GI tract.

Now, don't get me wrong, this is GREAT news. BUT, that does not give me answers!

The doc says it COULD be just an allergy to wheat. She wants us to try a wheat free diet, without going completely gluten free. (not sure exactly how to do that yet).

We will follow up with her in December to see if The Princess is still having the same symptoms.


Do I try GF, wheat free, or just a normal diet? Could it just have been her ears that were bothering her for SO long?

Since the moment she started eating Cheerios and crackers I noticed her change. She was moodier, she sometimes would get red spots around her mouth. She became bloated. And we started Acid Reflux meds. Could all of that mean it is really just an allergy? Is it all in my mind?

So, now I sit here and question myself. Am I seeing things where there is nothing. Or is there really something going on? I feel so confused and a little lost in all this.

Trying to decide what to do next...

Endoscopy has been scheduled...

for November 3rd. I will continue to "gluten her up" until then.

And, she is MISERABLE! She is cranky. She cries a lot. She is sleeping worse than before.

While GF for her 3 whole weeks, we had stopped her acid reflux meds, and she was HAPPIER! (other than the whole ear thing)

Now that she is back on gluten, I have had to start her "acid reflux" meds. I really think it is NOT acid reflux at all and is just the reaction her body has to the gluten.

My mom picked her up from daycare for me today since I was in an online meeting and she came home with the "All about my day" paper that stated "I ate nothing. She sat there and cried." AND "she cried a lot today."

NOT what I wanted to read! I so wish they had called me to let me know! I usually call and check on her but figured she was fine today and I was busy with conferences for work.

I will be making sure they know to always call me if she is acting like that. I hate thinking of her just walking around crying there. Poor baby!

I hate how she feels. I hate that she doesn't sleep well. Which means we don't sleep well. EVER.

November 3rd better bring some answers!

***SIGH***

Update on The Princess

Well, if you read THIS post, then you know that we went in to get tubes for The Princess. I am happy to report that the surgery went well and she is doing mostly better now.

The doctor said her left ear was REALLY inflamed and full of fluid (which he drained). She did great going off to the nurse before the surgery, only cried for a minute.

She had a hard time waking up after wards. She cried a lot and was thrashing herself around. I went in and held her in recovery and once she opened her eyes we got her to drink a juice. Then they rushed us out (that is how out-patient works around here).

They seem to kick you out pretty quick. She was still pretty fussy so I sat in the back of my dad's truck with her. I had her eating snacks within a few minutes and she was a much happier little Princess.

My mom took The Superhero to school and picked him up. Then she kept him until the afternoon so I could spend the day with The Princess.

The Princess and I watched a Strawberry Shortcake movie (her new favorite) and then we took a 2 1/2 hour nap around 11am. It was SO nice to sleep! She has not napped that well in a LONG time.

Since the surgery, she has started going to sleep easier. She is still not sleeping well, and is in bed with me every night.

She has also started talking and demanding things in her sleep. The other night she insisted we get her crocs for her (either that or socks). Before we even had a chance to get them, she was fast asleep. Last night she insisted on having a hair bow. I told her I was going to get one, and she went back to sleep while I pretended I was getting up. Silly Princess!

And on another Princess note, we went to the GI doctor yesterday. I can honestly say we talked about EVERYTHING that has ever gone in and come out of The Princess. There was more poop talk than I could have imagined.

But, the doc has determined that we definitely need to do an Endoscopy (upper) and something else in the lower area too. She named several reasons that The Princess could be feeling the way she has for so long.

I have to go back to giving her Gluten for the next couple of weeks and the procedure will be scheduled for 2-3 weeks from now.

I will keep you all posted on when this is scheduled and how it goes. I just want answers. She needs to feel better.

Thank you all for your thoughts and prayers. And, I will leave you with some pictures from her surgery day. Enjoy!

In Pompa's truck on the drive over, 5:30am.

She REFUSED to wear their gown, she chose to be naked instead (just a diaper).



Being super cute.


"Reading" a book with Pompa. (really watching the movie instead)



Eating a snack on the way home.